Showing posts with label special needs. Show all posts
Showing posts with label special needs. Show all posts

27 July 2012

Progress

The days here can be super intense. intense is the best word to describe the therapy that is happening with Luke. He requires a large amount of sensory activities throughout the day, there are days when of course it just doesn't happen I totally drop the ball or it happens in an organic way. There are days when I know he really needs me to focus on it and give it a lot of attention. There are so many days where I wish I had given him more.
 So i bet you are wondering what it is exactly that we do?? Well Luke is on a sensory diet and for him a lot of times that means doing sensory things that calm his system down. Luke can become very jerky throughout the day, like he cant control his movements. It is kind of like watching a small bird one second his head is looking one way and then the next it is the other way but it is almost like there was no movement in between because the movement was so fast. There are other times when he can become lethargic and we need to give his system a kick start. So when his system needs calming Luke tends to seek out things like rocking, banging his head against something, swinging, having his body being squished,  having deep pressure applied, chewing and most recently we have introduced body brushing and joint compression (aka bone bumping)
 The body brushing and bone bumping is to happen every two hours. Then he often wants something else like he wants me to rock him or squeeze him. it is really important that we are awear of the out come of each activity. Does it calm him or does it increase his alertness? Ultimately we are trying to get his system to be ready for other activities so that he can learn. It is far too hard for him to focus and concentrate when he is bouncing around.
So  once his body is in a state that can learn we are then working on: body strength, finger strength, fine motor skills, gross motor skills, puzzle work, block work, scissor work, hand wrining skills- drawing, sequential work- what comes next? Also language skills including concepts like same and different, boy and girl, doing words, size concepts, spacial concepts and using Key Word signing to help convey these messages.

This is what happens on the days when we are not seeing a doctor, pediatrician, gastoenerologist, occupational therapist, physio therapist, speech therapist, hydro therapist, opthalmologist or it is just a kindy day.

This is becoming a long post but I had it on my mind that I wanted to make a list of  Luke's progress because the days slip by so fast that sometimes it feels as though we are not making any progress.
A list of what Luke could not do at four but now can.

Dress himself
go to the toilet ( we are still having accidents but he can do it!)
sit cross legged on the floor
take more than two hand steps doing the wheelbarrow
 build a tower of more than 4 blocks
cut with scissors
draw a square
listen to a story
have his hair cut
answer a question
tell you something he did at kindy
go on a swing
open the car door
use a peg
draw a person
recognise any letters
recognise something is the same- he now does the sign
say a sentence more than 4-5 words
give you a hug with his arms and apply a bit of pressure
crab crawl
ask for help
understand the difference between boy and girl
know children at kindy's names
sit at mat time and listen (still could be a little better)

There a probably lots more small things that he has learnt too,but we are making progress!

19 June 2012

One Amazing Day

We have been in a constant pull between the amazing accomplishments and the walls that we still need to push through.
 Everyday seems harder than the last and somehow easier. Can I muster the strength today? Is a question I dare not ask myself because that would mean seeing that there is no way I can possibly do it all. I say thank you a thousand times a day.

 We have some amazing people supporting us, though there are areas where I see I really need more or just a different kind. This little soul has so many lessons to teach me, so many ways to expand my heart. I am blessed.

 Everyday there is so much more to learn. Can I push the boundaries, can I find a way, what needs to be done now, what does he need now, will we ever make it and how will we ever know if we have.

 How is he going to live in a world where people are so unkind to each other. Where it is only the few who see that we are all connected, we are all the same even when it seems on the surface we are very different. 

My Amazing little guy strayed away from the group on his kindy excursion to the Adelaide fire station and got some very special treatment. They were the most amazing guys looking out for Luke and making special accommodations for him. About 30 seconds after this last photo was taken the fireman had to get Luke out of  there pretty quick smart because he was off on an emergency, very exciting!!